Strittmatter Supports Running For Lulu

Amelie, affectionately nicknamed Lulu, is a vivacious four-year-old little girl who loves singing, swimming, and being surrounded by her family and friends. When Lulu was only three, doctors discovered she was born with a genetic condition called 22q11.2 Deletion Syndrome. She underwent medical treatment and continued to live life to the fullest.

A few months later, something changed. Lulu’s family began to notice a change in her behavior. Doctors confirmed what a parent never wants to hear about their child. Lulu had developed a golf ball sized tumor on her brain. After surgeons removed the tumor, they discovered that she had a very rare and aggressive type of cancer classified as Pineoblastoma. Doctors also found out that the cancer had metastasized in her spine.

Lulu has a fantastic team of medical experts, family, and friends supporting her. But she has a tough journey of aggressive treatment ahead of her. She will need chemotherapy and radiation administered together five days a week for six weeks. Anyone who has been close to someone battling cancer knows how hard going through this treatment can be. Lulu will be using unusually high doses of these medications for such a little girl. In addition to this treatment, Lulu will receive maintenance chemotherapy along with multiple blood transfusions and other medical procedures.